What is Disabled Person-Led Monitoring Research?
The United Nations Convention on the Rights of Persons with Disabilities is an international agreement. It sets out what governments must do to make sure disabled people have the same rights as everybody else. You can read the Convention here.
In 2008, the Government of New Zealand signed the Convention, indicating its commitment to making disability rights real in Aotearoa New Zealand. More than a decade on, it is important to understand if, and how well, this is happening. Monitoring research is how we do this.
In 2018, the Donald Beasley Institute was appointed by the Disabled Persons Organisation Coalition (DPO Coalition) and the Government of New Zealand as the research partner to carry out the monitoring research.
Over three years we will conduct inclusive and accessible research on behalf of the DPO Coalition that enables disabled people to share with their experiences of human rights in Aotearoa New Zealand. We will also be monitoring the progressive realisation of the Convention at a systemic level. This means investigating systems and policies that have resulted in the violation of disabled people's rights.
In 2019, we began by interviewing more than 70 disabled people and their families/whānau about their experiences of housing. These housing reports are expected to be launched mid to late 2020. We are now part-way through the next cycle of monitoring, where we are investigating disabled people's experience of health and wellbeing services.
It is important to know that this research is led entirely by disabled people. From the Project Lead and Research Assistant, to Monitors, transcribers, and participants, this project embodies the disability rights slogan 'nothing about us, without us' at every stage of the research process.
We will be using this webpage to publish updated information, including advertisements, calls to participate, research documents and forms, the final reports, as well as all of the content in accessible formats (audio, Easy Read, large print, New Zealand Sign Language and te Reo Māori).
My Experiences, My Rights: Health and Wellbeing 2020-2021
The DBI is now part-way through monitoring disabled people's experiences of health and wellbeing in Aotearoa New Zealand! This cycle of monitoring is being conducted over two key phases.
Phase One (COMPLETE): Because health and wellbeing are such broad and diverse subjects, we wanted to make sure this monitoring research was relevant, current, and driven by the disability community. To do this, we consulted with over 150 disabled people and their families/whānau on what health and wellbeing rights violations and issues they wanted to see investigated.
Phase Two (September 2020 - April 2021): During Phase Two, we will interview over 100 disabled people and their families/whānau on their health and wellbeing experiences. The questions we ask will be informed by what is shared with us during Phase One consultations.
Monitoring Update - Phase Two is Live!
Having consulted with over 150 disabled people, their family/whānau, and close supporters earlier in 2020, we are now ready to conduct in-depth interviews with disabled people, their family/whānau and close supporters, on their health and wellbeing experiences.
These are called ‘monitoring interviews’.
We want to know what disabled people think and feel about the health and wellbeing treatment, care, and services they receive, and what types of treatment, care, and services they would like to receive in the future.
At the end of the research we will be able to give the Government of New Zealand and the United Nations some good information about disabled people’s current health and wellbeing experiences, and suggestions on how to meet the health and wellbeing needs of disabled people in the future.
If you are interested in taking part in a monitoring interview and would like to know more, please read the research information in the tabs below. Alternatively, you can contact the Research Team at the Donald Beasley Institute. We will send you more information so you can decide if you want to register your interest or not.
*Please register you interest by filling out the Participant Interest Form. Registration will remain open until all interview spaces are filled.
** For research information in Braille please contact Umi Asaka (firstname.lastname@example.org).