Disabled Person-Led Monitoring of the UNCRPD

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What is Disabled Person-Led Monitoring Research?

The United Nations Convention on the Rights of Persons with Disabilities is an international agreement. It sets out what governments must do to make sure disabled people have the same rights as everybody else. You can read the Convention here.

In 2008, the Government of New Zealand signed the Convention, indicating its commitment to making disability rights real in Aotearoa New Zealand. More than a decade on, it is important to understand if, and how well, this is happening. Monitoring research is how we do this.

In 2018, the Donald Beasley Institute was appointed by the Disabled Persons Organisation Coalition (DPO Coalition) and the Government of New Zealand as the research partner to carry out the monitoring research.

Over three years we will conduct inclusive and accessible research on behalf of the DPO Coalition that enables disabled people to share with their experiences of human rights in Aotearoa New Zealand. We will also be monitoring the progressive realisation of the Convention at a systemic level. This means investigating systems and policies that have resulted in the violation of disabled people's rights.

In 2019, we began by interviewing more than 70 disabled people and their families/whānau about their experiences of housing. These housing reports are expected to be launched mid to late 2020. We are now beginning the next cycle of monitoring, where we will investigate disabled people's experience of health and wellbeing services.

It is important to know that this research is led entirely by disabled people. From the Project Lead and Research Assistant to Monitors, transcribers, and participants, this project embodies the disability rights slogan 'nothing about us, without us' at every stage of the research process.

We will be using this webpage to publish updated information, including advertisements, calls to participate, research documents and forms, the final reports, as well as all of the content in accessible formats (audio, Easy Read, large print, New Zealand Sign Language and te Reo Māori).

My Experiences, My Rights: Health and Wellbeing 2020-2021

We are pleased to announce the launch of the next cycle of monitoring on disabled people's experiences of health and wellbeing in Aotearoa New Zealand! This cycle of monitoring will be conducted over two key phases.

Phase One (June 2020 - August 2020): Because health and wellbeing are such broad and diverse subjects, we want to make sure this monitoring research is relevant, current, and driven by the disability community. To do this, we will consult with 100+ disabled people and their families/whānau on what health and wellbeing rights violations and issues they would like to see investigated. This will be done through an online survey (more information below).

Phase Two (September 2020 - April 2021): During Phase Two, we will interview over 100 disabled people and their families/whānau on their health and wellbeing experiences. The questions we ask will be informed by what is shared with us during Phase One consultations.


Phase One Consultations are now live!

In the tabs below, you will find all the information you need to tell us what health and wellbeing violations or policies you want us to monitor. There are two ways to do this.

  • The main way to participate in Phase One is by filling out the survey. All people can take part in the survey.
  • We also know there are some groups of people who are less likely to participate in monitoring research. To ensure that their feedback is documented as well, we will host a small number of focus groups with underrepresented populations.

Please note, if you want to take part in a focus group, you will need to send us your Focus Group Interest Form by Wednesday 8th of July 2020If you would like to take part in the survey, please do this before midday Friday 24th of July 2020.

For Braille copies of the research information, please contact Dr Robbie Francis Watene (details below).


Please complete this Focus Group Interest Form by Wednesday 8th of July 2020.


Twitter: DBI_tweet

Project Lead
Dr Robbie Francis Watene
027 529 2114

Research Assistant
Umi Asaka
021 109 3218


Project Artwork by Eve McCoy 


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